Greetings all, So this evening we launched our kickstarter for Chemosabe! We have some pretty cool perks so check them out and help us raise awareness for cancer by going to kickstarter, donating and watching the prologue!
Hey guys, as most of you know I interviewed over 150 cancer patient to help a new stage show I am doing here in New York. I wanted to share some of the interviews with you, because I feel it’s important to hear everyones story; from mothers, to fathers to friends to even the suicide hotline. This is a story about a mother coming to terms with losing her son.During the interview she was cleaning his room.
Life Is Never the Same. I Will Never Be the Same. Those
are only two of the many things I’ve learned since I
lost my son to Rhabdomyosarcoma.
*She starts folding his clothes and putting them into
garbage bags to donate to the goodwill*
Another thing I learned is that God DOES give us more
than we can handle sometimes. If God didn’t give people
more than they could handle we wouldn’t see people end
up in rubber rooms with drool puddles beneath them. We
wouldn’t see people drink themselves to death just
trying to numb the pain. We wouldn’t see parents give
up on life, on themselves and all those that love them
but don’t understand their grief. So, sometimes…God
does give us more than we can handle.
* She goes back to folding again*
I just had to get that off my chest, because if I had a
nickel (okay maybe a dollar with the economy the way it
is today) for every time I’ve had that said to me since
my son died..I wouldn’t be struggling to put gas in my
car and pay my rent every month. I have other children
to live for. And I do thank God for that. If it were
not for my twins who are 5 years old, I honestly can’t
say that I would be able to find a reason to get out of
bed in the morning, much less decorate a Christmas tree
or ice birthday cakes.
*After folding the clothes, she takes the banner
that spelled his name above his bed down, along
with clearing out the rest of the room *
My son was diagnosed with this horrible disease a month
after his 8th birthday. He had an inner ear infection
which wasn’t responding to antibiotics. We went to have
tubes placed in his ears to drain the fluid and that’s
when the mass was found in his right ear. It was
biopsied and I guess I knew even before I knew..a
mother’s intuition..that it wasn’t going to be good.
Nothing could have prepared me though for just how bad
it was.Have you ever even heard of Rhabdomyosarcoma? Me
either. I just remember thinking when I was writing it
down on a piece of paper, that it was the ugliest word
I had ever heard.
She picks up the broom and begins the sweep the
He was admitted the very same day to A.I. Dupont
Hospital and Chemo began almost immediately. I remember
his doctor telling me that although this was a very
aggressive disease, it had already metastasized to his
lungs and that there was no need to make plans for
*Stops sweeping to get the dustpan*
He was wrong. If I had known then, what I know
now..about the disease..I’m not so sure I would have
put my son through all the anguish the last six months
of his life turned out to be..especially the radiation.
I think I would have just spent the time I had left
with him doing all the things he so looked forward to
doing. Things we’d lay in bed and fantasize
about…..But, hindsight’s 20/20 or something like
that. You know…This is the first time I’ve been able
to talk about my son;the first year I couldn’t even
speak his name out loud. I can do that now. Baby
steps,it’s all baby steps,but right now..it’s time to
go play with my other children..lots of hugs and kisses..there are never enough of those. Another thing I learned.
Thanks for reading guys, if you’re New York in 2015 make sure to look out for the Cancer Chronicles.
Hey Beautiful people! I am proud to announce that next Tuesday we will be launching our new Kickstarter for our Web Series: Chemosabe.
Greetings Kids, today, 3 years ago to be exact, was the day I was told I wouldn’t make it to christmas. I was on revlimid, tired, depressed and definitely suicidal. It would be a lie to say that since then life has been perfect. Life really is precious and for all the hardships I have endure, it has only made victories mean so much more.
Today I don’t bring you my story, but I am working on a project where I have interviewed over 150 people. People who have lost children, friends, family members and yes, on occasion, themselves. I bring you: Tales from the Diagnosed. Here is one of my favorite interviews. Hope you enjoy!
Feb 2001 I was headed to Hawaii and decided to get a
tanning session to avoid burning on my trip. Got out of
the tanning bed and noticed my left nut was hanging
lower. Felt it and it was maybe 10-20% larger but felt
hard at the bottom ya know, less squishy. So like any
self respecting hypocondriac, I Googled testicular
cancer and Called the doc on Monday. Appt
Wednesday. Had it removed Monday. Two weeks of
radiation. Six weeks later, I suddenly lost ALL hair on
my torso in the shape of CA to include key lymph nodes.
Three months later it grew back just as quickly. Tired
for a year. I have 9 permanent tattoo dots for
radiation alignment. Scary at the time with young kids.
There was one funny part. Had to lie face up on a table
feet together and knees apart for 90 minutes while a
pretty young Asian technician X-rayed me and drew on me
to tattoo my dots and create my X-Ray lens. At the end
she had to scrub off all the markings with soap and
warm water. One is on my pubic bone. I was furiously
thinking about baseball to divert my attention. Atleast
she tried to make small talk though, she eventually
blurts out “has anyone ever told you that you look like
Toby Maguire?” (This was shortly after Spider-Man 2
came out, and yes I did). To this day I don’t know if
she was just nervous or legitimately trying to flirt.
My ball and I will never know…